Voice your hidden battle with PV
Managing PV includes understanding your lab results and more—it’s about how you’re functioning and living every day
Tell your doctor about what you are feeling and find out what that means for your health.
PV is a serious condition and you and your doctor will act as a team to manage your HCT, as well as your symptoms and how you are feeling, both physically and emotionally.
The downloadable resources on this website can help you keep a close eye on your experiences with PV.
Tracking your symptoms regularly helps you notice patterns, like when fatigue gets worse, or what might trigger itching, brain fog, or headaches.
Consider writing down symptoms in the provided Symptom Tracker. This can help you make the most of your doctor visits as you discuss what’s bothering you most about your PV.
Think about what you’d like to discuss with your doctor before the appointment, so you don’t forget any important details.
We provide a convenient Doctor Discussion Guide that you can download and share at your next appointment. When you and your doctor communicate openly, it helps build a stronger partnership, can reduce anxiety around conversations, and can lead to more personalized, effective care.